Yesterday morning was pretty rubbish. My mum always calls Northwick Park just as we leave the house and asks if someone on the ward could please open the paediatric entrance for us in five minutes from the call as it is locked and I cant walk thorugh the hospital.. We called at 6:50am and got there at 6:55am.When we got there, we expected that someone would have been by the door as this generally is the case. I cannot walk through the hospital due to my immune deficiency and I cannot wait in the cold due to carrying an nfection and this could easily turn into pneumonia. We stood by the door and a nurse had just gone back inside. I think she just came as soon as we called, took a glimpse and then gave up. We had to wait outside for ten minutes and because it was first thing in the morning, it was freezing and my legs ached because there was no seating. My mum had to ask the security man to let us in which he did. We were lucky he was kind as sometimes, they say no. When we got in I was appauled to see about three people just sitting at the nurses staion when they knew we were waiting outside. I saw the nurse who had walked back after probably just glimpsing and she said she had come but we weren't there. I would've waited - especially when someone is so susceptible to infection. I was really upset; It hurt me as noone made the effort. I took a seat in the waiting area by the door of Jacks Place so I could catch my breath as I had been waiting outside for so long I got sooo poofed out. The matron, Vicky Peploe came and was really rushing me. ' Come on come on '. I didnt even have enough breath to answer that I was tired and she kept repeating herself. Even though noone had spoken to mum, I was glad she told them that I was tired because I felt really under pressure to get up but I was so breathless that I needed time to catch my breath. I waited but Vicky was standing over me and I felt quite intimidated and under pressure to calm my breathing however I think it just raced faster because I felt under pressure. When I felt slightly better, I went into my room and sat down on the chair. I was surprised to see Ellen, another nusrse, there too - usually she is really nice to me however she didnt talk at all. It hurt my feelings because I dont feel I have done anything wrong. I took my portocath lumin (tube) out as I was already accessed but it Vicky sat down and pushed everything in so quickly and roughly dropped the syringes in the tray. It was like she was trying to get rid of me as soon as she could. I felt hurt. I feel deeply upset because I havent done anything wrong. In the aftenoon it was dejavu as the rushing of giving my antibiotics started again and another nurse accompanied Vicky Peploe. I would've thought that the ward matron at least could do something as simple as this by herself but maybe she needs extra help now. If the ward matron acts with such behaviour, the lack of speaking to me, the rushing - it doesnt really surprise me that her nurses act this way too.
In the night time, I went in for my antibiotics and I was met by the lovely Sharon. She came at me with a huge smile and she was really jolly. She spoke to me about everything and I was so glad. She is such a nice smiley, caring person and she is so efficient. She had everything ready and was so on the ball. I would love it if she were always there whenever I went in because she is too nice. She really cheered up my evening. I had her do my morning dose of antibiotics today and she was still full of bubbliness and smiles even after working for 12 hours. I appreciated her efforts and can guarantee that she is much loved by a lot of other patients.