Last night, I had my oxygen on all night and this morning I woke up feeling great! I still felt tired and got breathless but I felt much more energetic. It is great that the oxygen helps me.
I have had my Great Ormond St appointment re-scheduled for when I go in for my next pulse of steroids.
I am feeling a bit aprehensive about it though.I think we are going to find out if a lung transplant is going to happen or not.I'm trying not to think about it but now and again it crosses my mind.
Today I have tried to do some homework and i have played with my little brother. I also went food shopping with my mum.
I am going to be in the Harrow Observer newspaper for the charity dinner i hosted for GOS on Thursday so please take a look either online or in the actual paper.
Got to go now. Have a very lovely evening.