I am sorry I haven't been blogging. I came out of Great Ormond Street Hospital on Saturday after having three days of steroids however haven't been well enough to access the computer. My steroids were still given as large doses so I haven't really felt their effect until today. I am getting quite hungry and seem to be eating all the time!!! I am also feeling really stiff and achy again. I expected this as I felt this way last time I had steroids however the feeling is still rather unpleasant.
Whilst I was in Great Ormond Street Hospital, I spoke to the psychologist about all my worries. We had a good long chat about any anxiety I was feeling regarding school, health etc. Since I have been taking so much time out of school, I am starting to worry that I may be falling behind. I do my school work whenever I am able but sometimes I am just too tired or feeling too unwell to do it. Hopefully I will be able to get a list of things to do that I can work on next time I am in school.
The psychologist and I also spoke about the worries I had regarding how to handle school and health in general. We came up with some remedies on how to avoid upsetting/ stressful situations and I am interested in how they will take effect.
Today, I just relaxed and hopefully doing this will help my body recover quicker. My mum has gotten hold of a wheelchair for me to use as I am adamant that my aching body won't keep me from school. I will have it soon and it will be self propelling so I won't have to rely on anyone to push me. I also got an oxygen tank fitted at home so that I can breathe more easily at night and as and when I need help. I am glad that it is there so I know if I need it, it is ready for me to use.
Tomorrow, I am going to try and go to school for at least half of the day if not all of it depending on how well I feel.
Have a lovely evening and best wishes
Sadness. Feels like nothing once happiness can overcome the feeling.