Hello Everyone

So sorry we have not been blogging for a while.

Well it is Devaanshi's birthday tomorrow!She would be 19. In celebration of her birthday we go to Great Ormond Street Hospital where she was looked after and give toys to her wards. It is something she wanted us to do when she was not longer here. Then we are all going out for a family meal. :)

An update on Dushyant now.
He is doing very well. He doesn't need a respiratory review for a year! Which is amazing.

We appreciate all the work the staff of  Great Ormond St do to help Dushyant. Especially his doctors. This is a prime example of how all hospitals should be.

Happy Christmas

The Mehta family :)


 

Hello Everyone,

Well today has been a good day in the Mehta household. Today Jyotika turned 24.We went out for lunch and she cut her cake. Seems strange to celebrate birthdays or other such events without Devaanshi being physically present, Although we firmly believe that she is with us all the time.

Dushyant had a couple of paticaei (small bruising inside the body) come up yesterday. We are keeping a close eye on him even though he is fine overall.

Please keep reading this blog and we will keep you updated on Dushyant's health.

Thank you

The Mehta Family

Hey Everyone

Apologies for not blogging for a few weeks. Dushyant's appeal has been going on in full swing. Many more donors have signed up to the bone marrow registries. For this we are very grateful. We have not found one for Dushyant yet but are ever hopeful.

Dushyant is doing very well at the moment. He has started a mine craft blog of his own. ( minecraftlikeaboutit.wordpress.com) He is Devaanshi' s brother alright!

We are planning lots of family holidays and fun things over the summer. Whilst we live under the constant shadow of Dushyant' s illness. We are now learning that we should not restrict him whilst he is well enough to do things.

We will be organising Devaanshi's charity walk to GOSH shortly  and will keep you all posted with the details.

Have a lovely day

The Mehta family




 

please take a look at this article

http://www.dailymail.co.uk/health/article-2941484/I-donated-bone-marrow-big-sister-need-transplant-save-life-Boy-10-diagnosed-rare-illness-claimed-sibling-s-life-15.html

Link

Hi Everyone

As the campaign for more donors continues. Please go to the following link and share this article. It is very important that the drive to raise awareness carries on.



http://www.dailymail.co.uk/health/article-2941484/I-donated-bone-marrow-big-sister-need-transplant-save-life-Boy-10-diagnosed-rare-illness-claimed-sibling-s-life-15.html

Have a lovely day

Devaanshi's mum

please donate

Hi Everyone

As you have heard and seen in the recent press Devaanshi's brother now needs to find a matching donor. If you are able to help please visit these websites

1)Anthonynolan.org
2) deleteblood cancer.org
3)britishbonemarrowregistry-03001232323

Anyone can sign up up to the age of 55.

Or just type bone marrow donation into a search engine and you will be
Able to get more information on the registration process

Please also take a look at the appeal on BBC I player and the mail online and share on twitter, Facebook  etc .

Thank you

Kalyani Mehta(Dushyant and Devaanshi's mum)

Remembering Devaanshi

Happy New Year

Today as we embark on 2015...........I Devaanshi's mum would like to try and keep Devaanshi's vision and legacy going. Devaanshi was an amazing daughter and a huge inspiration to all around her. She had a vision that no other child should die due to a lack of organs. I would like to  request anyone reading this blog to go out and encourage family, friends and colleagues to go out and join the blood bone marrow and organ donor registries.
Devaanshi's younger brother Dushyant  and I will try to keep this blog updated. Please share this blog with everyone you know and also please feel free to leave a message.

www.nhsbt.co.uk
www.anthonynolan.org
www.aclt.org


Wishing you all a happy new year

Devaanshi's  Family

IT IS WITH GREAT SADNESS THAT WE ANNOUNCE THAT OUR BELOVED DEVAANSHI PASSED AWAY AT GREAT ORMOND STREET HOSPITAL LAST THURSDAY.  SHE WAS AN INSPIRATION, HER ZEST FOR LIFE WAS RELENTLESS. ON THIS NOTE WE HER FAMILY WOULD APPEAL TO YOU ALL TO DONATE TO HER BELOVED HOSPITAL GREAT ORMOND ST, ON HER JUST GIVING SITE. JUSTGIVING.COM/DEVAANSHI FUNDRAISING.

THANK YOU 

KALYANI MEHTA( THE PROUDEST MUM IN THE WORLD)

NEXT EVENT FOR GREAT ORMOND STREET HOSPITAL

SUNDAY 25TH MARCH 2012
7PM
HONEYPOT SPICE RACK
HONEYPOT LANE
STANMORE
LONDON
HA7 1EF

TICKETS 
:ADULT - £20
:CHILD UNDER 12 - £15

INVOLVES - 
AUCTION INCLUDING CELEBRITY SIGNED GOODS


THREE COURSE MEAL


LIVE MUSIC 


AND MUCH MORE...

Hello Everyone,
It has been to had a pretty bad three weeks for my mum and I. I had really bad abdominal pains and was unable to hardly move at all. I wasn't able to have proper food and had to live on a no spice, no dairy, no gluten or even wheat products.It was really difficult to be able to find something that appealed to me. Being Indian also, it was hard to eat bland food because our food is very different from English food.
Whilst at the hospital, I received an invitation to go to the Dorchester from Simon Cowell (and his mummy) and Max Clifford. There were a few other celebrities there such as Barbara Windsor, Louis Walsh, Lawrence Llewelyn Bowen, Amy Childs, Philip Scholfield, Andrea McClean, Sue Johnston, Andrew Stone, McFly, John Barrowman and many more people. They were all amazing and really kind people. Big Thanks to Rachel to sorting this out for us all.
Loveee Devaanshi x

Hello everybody,
The terrible reason i have been unable to blog is because I have been in Great Ormond Street Hospital for three weeks. I will update you later due to the fact that I am still pretty exhausted, Check out our next charity event - all details on the blog!
missed you and chat soon
Devaanshi

Just taking time out...

Hello everyone...
   Yet again, its been a long while since I last blogged. I have been unwell on and off throughout this month. Unfortunately, due to this my platelets were dropping much quicker than they usually did. Usually, I have a platelet transfusion of around 600mls every eight days. During the period where my health was not so good, I needed platelet transfusions every four or five days. I am glad to say that my platelet count is slowly returning to normal as are the frequency of having transfusions. When I was unwell, my blood count dropped more often than expected and I had to have 6 hours worth of blood every three weeks or so rather than my usual 6 hours every two to three months. This was worrying for everybody but I am thrilled to say that I am much better though I still have some days where I don't feel so good. I tried to make it to school a couple of times and managed to make it there for a couple of hours on one day but on another had to come home after just an hour due to extreme tiredness. On that day, I slept through the whole of the day and the night. It just goes to show how different each day can be.
Hopefully, the rest of the month will be positive and healthy
Best wishes and Smiles
Devaanshi x x x

HAPPY NEW YEAR ! ! !

Hello to everyone,
Firstly, Happy New Year ! We have arrived at the great stand of 2012. I hope 2011 was the best possible year and the coming year is just as fantastic for us all.
   I have not been updating my blog as regularly as I used to because unfortunately, I have been really unwell. I keep getting infection upon infection and constantly feel weak and tired. I have been trying to keep my drinking up because I haven't been able to eat as much as I used to. I have been keeping up with having my platelet transfusions at the hospital but recently I have been having to have blood and platelets more frequently. The infection probably is just dampening down all my cells.
I am feeling a little better and maybe 2012 will be a healthier start, a healthier year.
Enjoy the day,
Devaanshi x

IT'S CHRISTMAS!

MERRY CHRISTMAS EVERYONE!

I hope your Christmas has been very enjoyable so far - I hope Santa brought all the presents you wished for and that your day with family and friends goes smoothly.

Best Wishes

Devaanshi

Appreciate those who are there for you and care for you. 

Hello Everyone,
It was my 15 th birthday on Sunday and I had a pretty amazing day! I woke up at 7am that morning and everyone had awoken. I saw lots of wrapped pink wrapping paper. I got a foot spa, a facial sauna, a 5 in 1 styling kit for hair, Umberto Giovannini (i think that is how its spelt) Hair product kit, 5 mini perfumes that you dab on rather than spray so the air fumes aren't very strong.and wont make me cough as much. I also got a Gok Wan complete bath,shower,scrub,lotion, shower cream etc. My brother bought me diamante headphones and I got some stuff from shopping afterwards. We had a meal but then my ultimate present was some diamond earrings.
I had an amazing day. Thanks for everything
Devaanshi

Birthdays... they couldn't get much better than this!

Hello Everybody....

So... I've been unwell on and off recently. I’ll be fine minute and terrible the next. It is pretty annoying. I also seem to be finding myself coughing quite a lot - I always have a cough but this cough beats all others. I am also getting very exhausted all the time and pretty lethargic. On Friday I felt really unwell and had to go to my local Harrow hospital. I was pretty frightened for I had restricted breathing. I was sick about 15 times before the doctor came in after they had finished the whole of ward round (when they visit all patients in the children ward). I was so panicky but I had no energy to say anything due to my stomach pains, the constant vomiting and the pain. After a little while, my mum went to check if any nurses were around, as the oxygen mask had not been set up in the room. I found this quite odd considering that I do have lung disease however maybe they just didn't remember. That day, Johnny from X Factor was on the ward so I assume they all had to get pictures and autographs before they could attend to patients. In the end, I got Intravenous fluids and I'm sure I had instant morphine and medazalam ( very strong form of morphine - contributes to pain relief, and are, controlled drugs) - (calming medicine to make you relax).

I was petrified.

I’ll be back to blog more later... love you and leave you for the moment

Devaanshi
Though the weather is cold, yucky and gloomy – If you see a smile it’ll cheer up your day.

# Smile at someone today and see the difference you make 

Hi Everybody,
Glad to be back! I have been so unwell. I am on Intravenous Antibiotics  and am getting better fingers crossed. I planned a birthday do due to my birthday being on December 18th though I managed to have a wonderful birthday celebration meal at Pizza Express on Sunday. I was so scared I would still be ill for it but I managed to go and enjoy it. It was fabulous and many thoughtful friends came. I still didnt manage to go back to school however on Thursday, the Great Ormond Street Hospital Charity Christmas Party was held at the Royal National Hotel. I went and showed my support and met some really lovely people. Tess Daley, Chris Moyles and many others. I had a good time though it was very tiring. I had my wonderful brother, Dushyant, my friend Sarah, my fabulous sister, Tejal and my superstar mum come with me. Pictures will be posted up on the site.
Lots of love and I wish to be better very soon... I even popped into school just to say hi today!
Devaanshi


Hope never dies so long as you think positively.

Glad To Be Back!!!

Hello everyone,

I am pleased to say that I am on the mend. It was so frustrating that I couldn't keep you all informed about my life however I fell incredibly unwell. I felt a little unwell in the middle of November so Great Ormond Street Hospital brought me in early to have my steroid treatment which usually makes me feel a bit better. I had my stay... which consisted of nothing more than it usually did. There were no complications or anything. When I arrived home, I noticed that me back/shoulder/ limb aches were much more severe than usual. Though I took all my pain  relief I was still just in pain all the time. During the next couple of weeks I got pushed back with a very bad infection of some sort. I was bed ridden for ages and couldn't eat a morsel, though I was on the loo an awfully large amount of time. I  felt terrible - couldn't go to school or anything however I made the decision that when it was put to me to go into Northwick Park Hospital I wouldn't be able to stay or go and have intravenous antibiotics. I couldn't deal with it anymore. For a couple of nights, an ambulance had to be called to our home at night. On the first time, I had severe chest pains and popping sensations in my chest. It was so painful however when we arrived at the hospital, everything settled down slowly but surely. The second time, two nights later, I woke up and went to go to the loo. I fainted on the way back and then had chest pains that were excruciating. I thought it was the end of my life. We were once again taken by ambulance to hospital and we were in resuscitation from 11pm to 3:30 am. I got so scared but after lots of morphine and fluids, they allowed me to go home later on that morning. If anything happened, I want the end to be at home with all my family.Of course the question came of what to do to treat my infection and GOSH very kindly liaised with the local,my family and I and we negotiated that I would have oral antibiotics at home. Unfortunately however, the next day they found I had a specific infection and have started to treat me with intravenous antibiotics. It isn't so bad because the community nurses can come to our house during weekdays to do it.
On Sunday, I had my birthday party with some amazing friends. We went to Pizza Express and had a meal. Everyone was really nice and I had a fantastic time. I know just how much they care. Pictures will follow.
Have a lovely evening
Devaanshi
 Think of those who make that tremendous effort just to make your life a teeny bit better

Devaanshi Unwell :(

Hello Everyone,

Devaanshi has asked me to update her blog as she is very unwell presently. She knows that there are lots of you who have been waiting for her new post however she is currently going through a rough period she will write as soon as she is strong enough.
Thank you for your patience.

Quote -  Have the courage to live.  Anyone can die.

Devaanshi's mum.

Hi Everyone...
So... exciting news!
On Sunday went shopping with my friends. All day on Saturda I was deliberating on whether I should or shouldn't take my wheelchair. I knew I would get extremely tired without it however I wanted things back to normal...when I could walk. On Sunday, my mumdropped me offin the shopping centre and then once  my friends came, she went to do some of her own shopping. I  had decided not to take the wheelchair so mum said to call her if I felt I needed it so she could go and get it. My friends and I shopped and we had a fabulous time. Though we had to sit down very frequently and our lunch was two hours to renew my energy I MANAGED IT! WITHOUT THE WHEELCHAIR! I was so proud ofmyself! My lovely friends deserve a hugeeee thank you for being so patient with me. ThanksGuys!
 I then started to walk around school on Monday a little so hopefully my legs will getstronger.
 After a good day at school I went home and everything was fine. I settleddown. I was watching tv and then suddenly my eyes started to go really blood shot. I then noticed that a few of my nails had blood seeping through and the things in my mouth that I had thought to be mouth ulcers were blood clots. I was bleeding out of every open crevices in my body...literally. Mum and I went straight to the hospital. I was bleeding a lot by this time and was given three bags of platelets early as I wasn't due them until the following day. It was pretty stressful and we got home very very late but eventually, the bleeding settled. It was a pretty frightening experience and not one I would like to have again.
 On the Tuesday, I went to school; though I did go in later than usual. I had a good morning and break time, though nearing lunch  started to feel overwhelmingly tired and a little sick. In the end, my mum had to come and collect me from school. I have been off for the past two days as I have caught a bad cold and cant keep down much. I feel a little better today however so hopefully I will be okay for school next week.
Wish me luck
Devaanshi